#SongoftheDay Ordinary World (Duran Duran)

I needed to give myself a bit of time before telling this story, because what I'm going to tell you about was very upsetting. Made me cry a lot. And I knew that as soon as I told you about it, I would start crying all over again.

So I've taken a few days. 

Here we go.

Last week I had a medical appointment. I needed to get to my doctor's office for an injection. That day, my health was awful. I was weak and dizzy and all sorts of bad. Normally I would have used my walker, but the subway station near my doctor's office is not accessible. I mean, it is on paper, but in practice the elevators have been out of commission for over a year. The elevators are actually boarded up. So I know that if I take my walker to that station, I need to carry it up three flights of stairs. Which I have done. More than once.

But that day I decided to just use a cane instead. I needed the walker, but I did not have the strength to carry it up three flights of stairs.

Turned out the bus on my street wasn't running. I don't know why. There were no signs to indicate what was going on, but buses seemed to be detouring in the distance. 

So I walked to the subway. My body wasn't up for that, but... that's what had to happen, I guess.

I got on the subway and went one stop before they announced that there was a fire investigation going on and everyone would have to get off the subway, go up to street level, and board shuttle buses to continue.

By this point, I was already weak and exhausted. But what can you do?

I got myself up to street level. There were hundreds of people waiting. This is all just normal city stuff, but I'm learning that when you are chronically ill (as I am), normal stuff often feels impossible. If I'd been going anywhere but a doctor's appointment, I'd have headed home. But I needed my scheduled injection. 

As I was standing on the sidewalk feeling stupid, they started calling out that the subways were running again. We could head back down to track level.

There was kind of a stampede. Not even a major one. But I got pushed around so much. Oh my god. This is where I start to feel like I'm going to cry all over again. It never feels good to get pushed around, but being a visibly disabled person and getting shoved more times than I could count... something inside me broke.

I boarded a subway that was already packed. All the seats around me were taken by men in their 20s and 30s, I'd say. They all ignored me. I needed a seat. I'm using a mobility aid. Somebody should have offered me a seat, but no one did.

I kept thinking, "I'm going to have to speak up. I'm going to have to say: If anybody has a seat who doesn't need one, I need one." But I knew that if I spoke I would cry, and I didn't want to cry in front of strangers.

So I didn't say anything. 

The part of me that broke when I got pushed around in the station broke even more.

I held a subway pole and I clung to my cane and I tried my best to stay upright. My body was giving up. After two or three stops, I started shaking. My whole body was trembling badly. 

Finally, one of the young guys with a seat asked me, "Do you need to sit down?"

Um. What was your first clue?

I nodded. I couldn't say anything because I was going to cry. 

When I sat, my body collapsed. I was so, so weak. 

I held it together until I got to my doctor's office. I checked in with reception and apologized for being late. It wasn't a big deal to them, but it was a big deal to me because I think it's rude to be late.

The moment my doctor closed her office door, I burst into tears.

I've told you this story in the most unemotive way possible because if I tap back into the emotion of that experience I'm going to fall apart. 

I wish this didn't need to be said, but clearly it does: 

Don't push disabled people. 

If you have a seat and you see someone who looks like maybe they need it more than you do, offer it up.

If you don't have a seat and you're capable of advocating for other people, ask that person: "Do you want me to help you find a seat?" If they say yes, ask around on their behalf. I wish someone had done that for me. 

I needed help, and nobody helped. 

And that makes me so sad.


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See you soon!
Giselle


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